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Fifth annual New Orleans Myasthenia Gravis Walk scheduled for March 5 at Lafreniere Park

Written by  Whitney Santora
The New Orleans Myasthenia Gravis Resource Group will hold its Fifth Annual New Orleans Myasthenia Gravis Walk on Saturday, March 5, at the Lafreniere Park Pavilion with registration/sign-up beginning at 9 a.m. and the Walk starting at 10:00am. Sign-up is available at mgwalk.org/neworleans. The event has raised more than $150,000 locally in the previous four years, and nationally, MG Walks in 35 cities, have raised more $3 million to find a cure for the neuromuscular disease.
 
There will be entertainment, food, including jambalaya, hot dogs, fruit, snacks, water, soft drinks, also a photo booth and DJ for the event. The walk is free and consists of 1 mile or 3 mile options around the beautiful lagoon in Lafreniere Park, starting at the Pavilion shelter. Donations will be accepted at the Walk, and proceeds are committed to finding a cure for myasthenia gravis, improving treatment options and providing information and support through research, education, community programs, and advocacy through the national MGFA office.
MG can affect all ages, races and genders, and more than 100,000 nationally are diagnosed with the chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups and can affect muscles that control eye movements, eyelids, chewing, swallowing, breathing, coughing and facial expression, as well as, the arms and legs.
 
“Myasthenia Gravis is an often under-diagnosed and underpublicized muscular dystrophy disease that has no cure and affects many people across the nation and locally; this Walk helps us raise awareness of this disease to help us one day find a cure and we are thankful to Lafreniere Park for hosting our Walk to help us get the word out in the local community,” said Tommy Santora, Founder of the MGFA New Orleans Resource Group, which began in June 2011. Santora, a 37-year old resident of Harvey, who was diagnosed with the disease at the age of 12, leads the MGFA, New Orleans Resource Group’s quarterly meetings at the Elks Lodge in Metairie, and membership has grown to more than 100 Myasthenia Gravis patients, family members and friends since its founding.
Last modified on Tuesday, 07 March 2017
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